Migraine Awareness Month - Post #19: "The Match Game"

"Describe your perfect doctor to treat your Migraines."

• The perfect migraine doctor is a neurologist whose practice primarily treats head pain disorders.  
• He or she is kind, compassionate and knowledgeable about the latest research, or participates in research studies about head pain disorders.
• The doctor empowers the patient by facilitating shared decision-making in the patient's care.  
• The doctor and patient treat each other with respect. 
• The practice is staffed by competent and efficient personnel. 
• There is a nurse available to answer questions during office hours, and there is an emergency contact number where someone can be reached for problems that crop up during evenings, weekends and holidays. 
• General questions are answered within one business day
• There is a prompt response when the patient has an urgent or emergent need.  
• They honor most insurance plans and are willing to set up a reasonable payment plan for those with no insurance, or for the items not covered by insurance. 
• The doctor listens when you say that you don't want drugs that will further impair your cognitive abilities or that you are a light-weight when it comes to certain classifications of drugs. 

I am pretty lucky in that my internist referred me to a migraine specialist right at the onset of my battle with chronic migraine.  He listened to my suggestions and the suggestions of other health care professionals, incorporating those ideas into my care plan. He did not advocate the use of narcotics, which I appreciated. 

My current neurologist (who looks a lot like the guy in my photo) spent an hour with me at my intake appointment and did not seem hurried, distracted or worried about getting behind schedule. I felt as if his entire focus was devoted  to solving my problems.  He asked me at the end of our visit if I had any other questions.  I appreciated that.

I have heard horror stories from many other migrianeurs about their physicians, and feel very fortunate to have found competent physicians in my geographical area.   Despite the fact that I have a chronic incurable disease, when it comes to my medical care, I feel  blessed.

National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com.

Migraine Awareness Month - Post #18: "The Price Is Right"

Today's blogging prompt is "The Price is Right."

 "What one thing would you do for the Migraine community if money were no issue?"

http://fortreatment.blogspot.com/p/migraines.html

This is a tall order indeed, as the "migraine community" is such a large demographic.  It is estimated that about 10% of the general population are diagnosed with migraine, but many people suffer from migraine without even knowing. They think it's a tension or sinus headache.  Here are a few facts about migraine, and areas that need more research:

• Migraine is a syndrome that affects many other bodily systems besides the head.  It is difficult to treat because the preventive medicine that works for person A may not work for person B or C. Because migraine has a constellation of different presentations, it is a tricky disease to treat.   It's taken me 5 years, 5 doctors and about 50 different medicines to begin to believe that I am on the right track.  

"Researchers are still unsure about the root cause of migraine disease.  Migraine remains poorly understood and frequently mistreated. Researchers still do not understand many things about the causes of migraine, the role of genetics, the nature of pain, and the reasons why medications work only on some people and in some situations. As a result, sufferers often endure a lengthy process of trial and error to discover an effective treatment. Once a treatment is determined, it may not alleviate every attack, and it may prove ineffective over time." (http://www.migraineresearchfoundation.org/about-migraine.html)

• Migraine is among the 20 most disabling medical conditions, yet very little federal funding is targeted toward migraine research and development of medications and other treatments. In fact, most of the meds we use to treat migraine (with the exception of those in the triptan family) were developed for other purposes, primarily seizure and bipolar disorder. 
• About 10% of children also suffer from the disease. These young people are often ignored or misdiagnosed.  Development of medication for pediatric patients is very difficult because it is hard to find children whose parents will allow them to participate in drug trials.Virtually NONE of the medications used to treat migraine in adults have been approved for pediatric use.
• This is a disease that affects three times women as it does men, and includes menstrual migraine.  
• About 2% of the US population suffers from chronic migraine. This means that we are out of commission with migraine for 15 days a month or more.  Try having a normal life with that kind of disability.  It's nearly impossible.   
• We try everything and anything to get our lives back, including alternative or complementary treatments such as meditation, massage, reflexology, chiropractic or osteopathic medicine and acupuncture. There is very little research on the efficacy of these complementary treatments. Nearly all of this is an out-of-pocket expenditure. Couple that with the fact that few of us with chronic migraine can work full time, and you've got a very financially stressful situation. 

How can I possibly choose "one thing" to tackle first?  Here is my wish list:

1. More money toward research on the root causes of migraine, which may lead to more migraine-specific treatments.  
2. More training for physicians about migraine disease to facilitate early diagnosis so people can have effective treatment from the outset.
3. More migraine specialists. Neurologists are fine, but migraine specialists are trained to deal with the myriad of migraine presentations and complications. 
4. More education of the general public so they understand what a truly disabling condition this is.  It's not a hang over or a bad headache. It's nausea, vomiting, diarrhea, dizziness,  cognitive processing difficulties, difficulty speaking, reading or writing, extreme sensitivity of the senses (vision, light, sound, taste, smell and even touch). 
5. More research on the efficacy of traditional western medicines and of complementary therapies.  
6. Insurance coverage for evidence-based traditional and complementary therapies proven to work. 

"There is no condition of such magnitude - yet so shrouded in myth, misinformation, and mistreatment - as migraine."

Joel R. Saper, MD, Chair, MRF Medical Advisory Board

http://www.migraineresearchfoundation.org/about-migraine.html#chronic

Migraine Awareness Month Post #17: Father Knows Best

Here is today's mission: 

"Some understand Migraines, some don't. Write a letter to your father or the man closest to you, and talk about your Migraines."  

Dear Sweetheart:
Happy  Father's Day!
I want to tell you how much I appreciate you and the love, kindness and compassion you've shown me throughout our battle chronic migraine.

http://www.dailytelegraph.com.au/training-from-his-and-her-perspective/story-fn6b3v4f-1226075925082

I say OUR battle, because you are right along beside me in the front lines. You can usually tell when the prodrome of the migraine is coming on before I can, just by looking at me.  You blow off the rude comments when my prodrome symptom is irritability.  You don't complain that we planned for me to be working more than 30 hours a month to help support ourselves, or the financial drain that goes along with it. When we have to cancel plans or leave early,  you always let me know it's okay. When I am in the throes of the migraine, you always seem to know just what to do. I know that you are suffering right along with me.

When I am feeling low and knock myself down by saying things like, "I am sorry that I am not the woman you married," or "you didn't get what you'd bargained for," you always say something that makes me feel secure and less angry at myself.  You are my best friend, and the one person who truly "gets" me.  You've always got my back.  And if you're lucky, my front.

I love you more than words can say.

Your devoted wife, Jill

http://www.how-to-draw-and-paint-smart.com/how-to-draw-a-heart-with-banner.html

National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com.